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Thursday, August 30, 2018

Piece of the Puzzle

“Knowing a disappointing truth is better than wondering forever.” -Unknown

Over the course of over five years, I have been pregnant only two times. Only one of those babies do we get to hold this side of heaven. In more than over two years of trying since our miscarriage, there has not been a single positive test. Two years is a long time to go with no definitive answers. But that might be about to change.

At the beginning of the year, we found that my thyroid needed a little help to do its job (aka hypothyroidism). Even once the medication dosage was figured out, that treatment did not seem to be improving our fertility problems. My doctor began to suggest IUI might be a good option for us as there seemed to be no explanation for our issues and everything appeared to be fine. However, we didn't feel the same way and were still concerned that there might be underlying health issues that could be missed in jumping to such “solutions”.

In June, we decided to contact a clinic that specializes in solving fertility problems naturally, a place several friends of mine had visited and experienced success in addressing health issues that then led to healthy pregnancies. The Pope Paul VI Institute (PPVI) is an international leader in developing and practicing Natural Procreative Technology (NaProTechnology) and happens to be located just one hour away in Omaha, Nebraska. Our first appointment was set for early August and we began tackling the required preliminaries before that meeting, namely learning the Creighton model of fertility tracking (CrMS). It was frustrating that they wouldn't see us until 60 days after we started using CrMS but, looking back, I can see now how much information it has added to the discussion. It still frustrates me at times, as my perfectionist nature wants everything to be “right”, but I'm learning to trust my judgement more now, three months into it.

Since that first appointment, a battery of tests including bloodwork and ultrasounds have occurred and, later this fall in October, I will have a diagnostic laparoscopic surgery. Even before the testing officially began, it simply felt good to be doing something, to have a plan to discover any underlying health issues, even if it meant becoming a human pincushion and driving to Omaha every day for six days straight for ultrasounds. But all of this may have already turned up at least one piece of the puzzle…

LUFS

It's an acronym I hadn't heard before, even amongst friends that also struggle with infertility issues. It stands for “luteinized unruptured follicle syndrome” and is not terribly common. Information from PPVI says they see it in only 15% of cases where women have regular cycles but still struggle with infertility. Basically, my body will give every sign that a cycle is normal and that I'm ovulating. Basal body temperature, cervical mucus, and even ovulation predictor tests will all look like everything is functioning normally. But when observed through ultrasound, we can see that, while my ovary may develop a follicle, that follicle will not rupture to release the egg.

Being me, I immediately dove into research, reading abstracts of any medical papers I could find that referenced LUFS (yay for PubMed). LUFS was first described in 1978 and can only be diagnosed with laparoscopic surgery or daily ultrasounds around the time of ovulation (how we found mine). Clomid alone, seemingly one of the most popular first steps with doctors when facing infertility, is actually one of the least effective treatment for LUFS.

We haven't met with the doctor yet and probably won't form an actual treatment plan until all the testing is done and we have a complete picture (there's a possibility PCOS is involved as well in all this). But at least for now, it feels satisfying to just have one piece. I'm grateful we don't have to wonder forever.

Soli Deo Gloria,
Meghan